If you ask Ruby’s parents, Cindy and Steve, they’ll tell you that her older-than-her-years maturity would prove to be their best ally, giving them the ability to reason with Ruby why she needed to undergo often painful treatment.
Ruby was strong. But she wasn’t invincible. The combination of her physical weakness and the shock of what was about to happen overwhelmed her. As her physical condition deteriorated, Ruby almost completely withdrew and became very watchful of her surroundings and the people that were coming and going.
As well as treatment, Ruby needed huge doses of love plus constant attention and reassurance. But also wanted to be treated like a normal child.
“Within four hours of a blood test you are in an ambulance being taken to a hospital in a place you have never been to before with the word leukemia being thrown about. We were to hop on a rollercoaster that would take us on the journey of our new life.”
When Ruby is at home, her parents need to wear purple gloves to administer Ruby’s medications. When she goes out, Ruby wears face masks to help prevent contracting any illnesses – hardly normal for a girl her age.
Ruby has spent nearly two years in and out of hospital, which feels like an eternity to her.
For the first six weeks of treatment, Ruby was withdrawn and wouldn’t really talk. Her mum Cindy believes it was the bedside visits by Captain Starlight that got her to smile and talk again. For Ruby, Captain Starlight was a great distraction and reward for her patience in bravery.