Jordan Grace was born with Trisomy-21, the most common form of Down Syndrome. But for Maria, it is not a “disease” or a condition to ‘cope with’. It is one to celebrate. To know and love a child with Down Syndrome is a gift.
“I never thought this day would come. No, not the day when they told me my baby had a heart defect. Not the day when they told us more than likely this heart defect was associated with Down Syndrome. Nor the day when I cried myself to sleep thinking about what life would be like for my precious baby.
Not when she had open heart surgery. Or all those days that she had echoes and ECGs to make sure the surgery had gone well.
Not that day when she smiled, or laughed, or cried. When she rolled to get her toys or when she sat and scooted for the first time. When she stands in her crib by herself and says mama each day! When she signs and communicates so well.