When Steph was just 19, a doctor told her she was gradually going blind.
She was diagnosed with cone rod dystrophy, a degenerative condition of the eyes that leads to gradual blindness.
“I think I kind of knew,” Steph, 31, tells Mamamia over the phone from her Melbourne home. There’s no sense of flatness in her voice or drama in her story. It was what it was, it is what it is.
“My mum got diagnosed before I did, because it’s a genetic condition.
“I remember after that being really conscious of my vision, but everyone told me I was being paranoid because of my mum. I knew my night vision wasn’t what it should be and that’s what starts going first. I had to go to Sydney and get heaps of tests.
“Then they told me.”
At the beginning, Steph says, she was fine. She expected it. Then reality came thick, fast and furiously.
“I went through a really big bout of anger, like I was really angry at my mum in particular. My mum and I are so close, and I didn’t really speak to her for 12 months. And when I did, I wasn’t very nice. I just played the blame game.